We are here at Children's Hospital in DC. Robbie had spinal fusion surgery on Monday and seems to be doing well. With the correction of the curvature in his spine he gained five inches in height. We are going to learn how to ng/ tube feed him this evening. He needs to gain some weight. The will teach us how to insert the tube down his nose and operate the pumps etc...
I am really missing the comforts of home right now. But only a few more days and a few more hurdles and we should get there.... UGHHH I will try and update later.